tag:blogger.com,1999:blog-2327216242738438564.post1001227131729373605..comments2023-08-18T01:02:38.716-07:00Comments on Paradise From My Porch.: Extreme Moderation and Meniere's Disease: My Struggle.Allan Stellarhttp://www.blogger.com/profile/07167114447852191877noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-2327216242738438564.post-81099063592485150542016-04-06T17:58:00.336-07:002016-04-06T17:58:00.336-07:00I was diagnosed with meniers since 2004 after havi...I was diagnosed with meniers since 2004 after having a series of testing done. vng test, coloric test (cold water inserted into the ear, rotory chair test. I continued to work and didn't tell my employer about it when hired. I was slowly losing my hearing over the last 10 yrs and had to have 2 hearing aids which would be adjusted as I lost my hearing. I had the tenitus also. in 2014 I started having attacks at work. (nursing) in march of 2014 I had 2 attacks at work and was put out of work (short term disability)<br /><br />I was again tested but this time my dr sent me to a university hospital that had a balance center that dealt with vestibular nerve damage, menieres, etc after having the testing done again I was informed that I would not be able to continue to drive or work. I was told to file for SSDI since I had worked for the last 37yrs. I was devastated that I was told I could no longer work or drive.<br />I filed for social sercurity disability and was awarded with it 98 days from the time I filed to the time the government said yes you are disabled and can not work any more. I am also profound hearing loss. everything sounds like it is muffled like im under water when spoken to. <br />My vestibular nerve was serverly damaged and no longer working which would explain why I would lose my balance as I was walking or run into door jams as I turned to walk into a patients room. lol Its been 2 yrs now and im still adjusting to not being able to work anymore since I loved my job. but it is what it is and im not going to die from it. my attacks are similar to yours. I have a 5 minute window when that strange feeling comes over me, I lose all sense of balance and am sweating profusely, and the my world starts to spin I am vomiting and my attacks last between 6-8 hours, I tell myself as im laying in bed vomiting, sweating, spinning that today atleast I get paid to feel so sick. sad but like I said it is what it is.oreocookie1https://www.blogger.com/profile/03775278681791955181noreply@blogger.comtag:blogger.com,1999:blog-2327216242738438564.post-2625858246535860552016-04-06T11:31:31.061-07:002016-04-06T11:31:31.061-07:00I have had this disorder for over 15 years. My at...I have had this disorder for over 15 years. My attacks are daily lasting often times near 24 hours then another attack follows. I am deaf in both ears from this disorder. I have limited sodium, no caffeine, and no alcohol. I am also vegetarian. Nothing helps. One can have a short remission, then it can (and often) returns with a vengeance. I am also an RN and had to go on disability.pbeckhttps://www.blogger.com/profile/17029386712683321435noreply@blogger.comtag:blogger.com,1999:blog-2327216242738438564.post-51359047755671906502016-04-06T11:29:05.308-07:002016-04-06T11:29:05.308-07:00I have attacks daily, sometimes multiple attacks, ...I have attacks daily, sometimes multiple attacks, that last often times for near 24 hours then another attack again. I do not have any alcohol, caffeine, and low sodium. I am also vegetarian. I have had this disorder for over 15 years and am now totally deaf in both ears. Best of luck to you.<br />pbeckhttps://www.blogger.com/profile/17029386712683321435noreply@blogger.comtag:blogger.com,1999:blog-2327216242738438564.post-2581258452668156192016-03-27T06:01:50.933-07:002016-03-27T06:01:50.933-07:00Hi Allan, best of luck dealing with it. I have a s...Hi Allan, best of luck dealing with it. I have a sense of how aggravating it can be--I've always had a milder version, with mental fogginess and temporary hearing issues but no spinning, just a complete loss of balance. Fortunately, it seems to bother me less as I've gotten older, but it was part of the reason I didn't drive in my teens. I was once walking along the side of a road in winter and had to fling myself into the snowbank to avoid walking in front of passing cars. You're absolutely right about the three S's -- I noticed those too along the way.greentanglehttps://www.blogger.com/profile/00693478617579227798noreply@blogger.com